Foundations Steering Committee
The Steering Committee is to provide guidance and direction to ensure the work of the foundation follows Theda's beliefs and her families wishes. The committee has five permanent members: Carol Adams, Khin Myint, Jane Ann Crowley, Karen Smith and Ailsa Burgess. Karen and Ailsa also have active lead roles on the various working committees within the foundation.
Photo above: Carol Adams (with Toffee), Khin and Theda (with Maggie)
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Carol Adams is Theda's Mum and was her primary carer throughout her lengthy illness. Carol connected with many people, in the support groups.
Khin Myint is Theda's younger brother, who in Carols words, Theda adored immensely, she also loved to lead him into mischief by all accounts. The final selection of the name for the foundation (Based on the magical themes we are utilising to raise awareness) was chosen by Carol and Khin, with Khin noting that Theda would love "Theda's Mythical Dream Team" because she was "just as much a nerd as him".
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Jane Ann Crowley was a very dear friend of Theda's. Theda is Godmother to Jane-Ann's daughter.
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Karen Smith connected with Theda and Carol late 2011. Joining Theda (and later Carol) to her first Lyme group. Karen co-founded Red Shoe Day, the remembrance day for all those lost to invisible illness .
Ailsa Burgess connected with Theda and Carol through her work with the support network Chrysalis in Western Australia, Perth. Ailsa was with Carol when they found that Theda had passed.